Welcome!

Hello and welcome to the blog that is all about choroideremia!  We are a family that has three, teen sons with this genetic, rare eye disease and are dedicated to raising funds to find a cure.  We will be inviting anyone and everyone who has an idea for fund raising; post fund raising stories; your stories about dealing with this disease in your family and all points in between!

Until then, please visit my other blog and read about a  fund raising idea called "The Naked Doll Project".  I am looking for suggestions and comments and I would appreciate your input!!